ultimas noticias sobre ataxia de Friedreich

La acuarela, aliada contra la ataxia de Friedreich - El Correo Gallego

La acuarela, aliada contra la ataxia de Friedreich
El Correo Gallego
Se trata de la segunda exposición de este tipo que organiza la Fundación Ataxia de Friedreich en Movimiento con la Agrupación de Acuarelistas de Andalucía y con otras agrupaciones similares, después del éxito que tuvo una edición anterior en Sevilla.


María Narro presenta su nueva novela ambientada en Sigüenza - Guadaque (blog)

Guadaque (blog)

María Narro presenta su nueva novela ambientada en Sigüenza
Guadaque (blog)
En concreto, Mª Carmen relata cómo afronta ella el padecer ataxia de Friedreich, una de esas raras enfermedades degenerativas que afecta al sistema nervioso. "Fotos de un Adió" relata su propia vida, mezclándola con sus propios pensamientos.


Ardee man plummets from plane to battle condition - Dundalk Democrat

Dundalk Democrat

Ardee man plummets from plane to battle condition
Dundalk Democrat
Colman Clerkin suffers from Friedreichs Ataxia, a rare genetic disorder that affects balance and co-ordination. Speaking to the Dundalk Democrat, Colman said: “I was one of the 39 jumpers from Ireland that took part in the charity jump.

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Intellect Neurosciences, Inc. to Present at Neurotech Investing and Partnering ... - MarketWatch (press release)

Intellect Neurosciences, Inc. to Present at Neurotech Investing and Partnering ...
MarketWatch (press release)
The company recently licensed OX1, a small molecule multimodal antioxidant, to ViroPharma, Inc. for Friedreich's Ataxia and other neurodegenerative diseases. For more information, please visit www.intellectns.com . The statements in this release and ...

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Davis bike ride to raise funds for disease - Daily Democrat

Davis bike ride to raise funds for disease
Daily Democrat
By Democrat staff Hundreds of supporters are set to take part in a nationwide bike ride in Davis Saturday in an effort to raise funds -- and hope -- for a cure to Friedreich's Ataxia. Friedreich's Ataxia is a debilitating, life-shortening degenerative ...


Searching for a cure - Marinscope Community Newspapers

Searching for a cure
Marinscope Community Newspapers
By Nicole Baptista BeeJay Acker-Hitta looked at Kiela, her 10-year-old daughter, uncertain of how to tell her she had Friedreich's ataxia, a disease that would overcome her body and eventually end her life. “There's not anything you can do or take ...


Mother's plea to improve her daughter's limited life - West Sussex County Times

West Sussex County Times

Mother's plea to improve her daughter's limited life
West Sussex County Times
Aila Figura, 16, has Friedreich's Ataxia which affects less than two in 100000 people in the UK. Pictured with mum Anneli Figura - photo by Steve Cobb THE MOTHER of a 16-year-old girl with a life limiting condition is on a mission to provide a happier ...


Bike Ride Helps Raise $100000 For Rare Disease - KCRA Sacramento

Bike Ride Helps Raise $100000 For Rare Disease
KCRA Sacramento
Hundreds of cyclists are gathering in Davis to help fund research at UC Davis to help find a cure for Friedreich's Ataxia (FA). FA is a debilitating, life-shortening, degenerative neuromuscular disease. More than a dozen people with the FA are taking ...

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Intellect Neurosciences Expands Its Immunotherapy Pipeline with New Technology ... - MarketWatch (press release)

Intellect Neurosciences Expands Its Immunotherapy Pipeline with New Technology ...
MarketWatch (press release)
The company recently licensed OX1, a small molecule multimodal antioxidant, to ViroPharma, Inc. for Friedreich's Ataxia and other neurodegenerative diseases. For more information, please visit www.intellectns.com . The statements in this release and ...

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Health calendar - Sacramento Bee

Health calendar
Sacramento Bee
Ride Ataxia Norcal bike-riding fundraiser for Friedreich's Ataxia cure. 7:30-10 am registration; 15- to 68-mile bike rides start 8:30, 9, 9:30, and 10 am; Veterans Memorial Center, 203 East 14th St., Davis. $30-$35. $10 more day of event.

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